Privacy Policy
This site is owned by Shire Human
Genetic Therapies, Inc., a business unit of Shire Inc. This Online
Privacy Policy is designed to tell you about our practices regarding
collection, use, and disclosure of information that you may provide via
this site. Please be sure to read this entire Online Privacy Policy
before using, or submitting information to, this site.
Your Consent
By using a Shire site, you signify
your assent to the Shire Online Privacy Policy. If you do not agree to
this policy, please do not use our sites. We reserve the right, at our
discretion, to change, modify, add, or remove portions of this policy at
any time. Please check this page periodically for changes. Your
continued use of our sites following the posting of changes to these
terms will mean you accept those changes.
About Children
This site is not intended for
children under the age of 13. We will not knowingly collect information
from site visitors in this age group. We encourage parents to talk to
their children about their use of the Internet and the information they
disclose to Web sites.
About This Site
In our effort to bring you
up-to-date, accurate disease and resource information, we use various
expert sources and studies to develop site content. As a result, you may
find slight differences in statistics and/or percentages across various
articles-because different sources can view data differently. Shire is
not engaged in rendering medical or similar professional services or
advice via this Web site. If you desire or need such services or advice,
you should consult a professional health care provider.
Information We Collect and How We
Collect It
Many of the services on our site are
offered without our collecting any personally identifiable information
from you. You can visit our site and view most of the content
anonymously.
The information we gather on our site
falls into two categories: (1) personally identifiable information you
supply, and (2) aggregate information collected as you navigate through
our site.
Personally Identifiable Information
Collection
Like many Web sites, this site
actively collects information from its visitors both by asking you
specific questions and by permitting you to communicate directly with us
via email, feedback forms, and/or chat rooms. Some of the information
that you submit may be personally identifiable information (that is,
information that can be uniquely identified with you, such as your full
name, address, e-mail address, phone number, and so on).
Some areas of this site may require
you to submit demographic information in order for you to benefit from
the specialized features (such as receiving disease-related information,
tips/pointers, etc.) or to participate in a particular activity. You
will be informed at each information collection point what information
is required and what information is optional.
Aggregate Information Collection
As you navigate through a Web site,
certain information can be passively collected (that is, gathered
without your actively providing the information) using various
technologies and means, such as navigational data collection. This site
may use Internet Protocol (IP) addresses. An IP Address is a number
assigned to your computer by your Internet service provider so you can
access the Internet and is generally considered to be non-personally
identifiable information, because in most cases an IP address is dynamic
(changing each time you connect to the Internet), rather than static
(unique to the particular user's computer). We use your IP address to
diagnose problems with our server, report aggregate information,
determine the fastest route to your computer in connecting to our site,
and administer and improve the site.
We also collect information about
your use of our site through cookies and similar technology. A "cookie"
is a bit of information that a Web site sends to your computer that
helps the site remember information about you and your preferences and
recognize you as a return visitor to the site. Cookies, by themselves,
do not tell us e-mail address or other personally identifiable
information.
"Internet tags" (also known as
single-pixel GIFs, clear GIFs, invisible GIFs, and 1-by-1 GIFs) are
smaller than cookies and tell the Web site server information such as
the IP address and browser type related to the visitor's computer. This
site may at times use Internet tags.
"Navigational data" ("log files,"
"server logs," and "clickstream" data) are used for system management,
to improve the content of the site, for market research purposes, and to
communicate information to visitors. This site may at times use
navigational data.
Use and Disclosure of Information
Except as otherwise stated, we
may use your information to improve the content of our site, to
customize the site to your preferences, to communicate information to
you (if you have requested it), for our marketing and research purposes,
and for the purposes specified in this Online Privacy Policy. If you
provide personally identifiable information to this site, we may combine
such information with other actively and passively collected
information.
We may disclose your personally
identifiable information to our affiliates worldwide that agree to treat
it in accordance with this Online Privacy Policy. In addition, we may
disclose your personally identifiable information to third parties
located in the United States and/or any other country, but only (i) to
contractors we use to support our business (e.g., fulfillment services,
technical support, delivery services, and financial institutions), in
which case we will require such third parties to agree to treat it in
accordance with this Online Privacy Policy; (ii) in connection with the
sale, assignment, or other transfer of the business of this site to
which the information relates, in which case we will require any such
buyer to agree to treat it in accordance with this Online Privacy
Policy; or (iii) where required by applicable laws, court orders, or
government regulations. In addition, we will make full use of all
information acquired through this site that is not in personally
identifiable form.
Access and Correction
To keep your personally identifiable
information accurate, current, and complete, please contact us as
specified below. We will take reasonable steps to update or correct
personally identifiable information in our possession that you have
previously submitted via this site.
Security
We take reasonable steps to protect
your personally identifiable information as you transmit your
information from your computer to our site and to protect such
information from loss, misuse, unauthorized access, disclosure,
alteration, or destruction. You should keep in mind that no Internet
transmission is ever 100% secure or error-free. In particular, e-mail
sent to or from this site may not be secure, and you should therefore
take special care in deciding what information you send to us via
e-mail. Moreover, where you use passwords, ID numbers, or other special
access features on this site, it is your responsibility to safeguard
them.
Links to Other Web Sites
This site may contain links or
references to Web sites. Please be aware that we do not control other
Web sites and that, in any case, this Online Privacy Policy does not
apply to those Web sites. We encourage you to read the privacy policy of
every Web site you visit.
How to Contact Us
If you have any questions, comments,
or concerns about this Online Privacy Policy or about the information
practices of this site, or would like to have your information removed
from our files, please contact us as follows:
Shire Human Genetic Therapies, Inc.
Attn: Online Privacy Policy
700 Main Street
Cambridge, MA 02139
This policy was last revised June 17,
2009.